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Stories of Patients

Heather -  Heather is one of the original members of the Pink Disease support group and details her journey with the disease.

Read Heathers story here.
 

Patrick - Patrick was born in 1952 and has Pink Disease since early childhood. 

Read Patricks story here.

Hazel - Hazel was born in mid 1945, one of 6 children. Hazel has suffered from Pink Disease her entire life.
Read Hazels story here.

If you have a story of your Pink Disease journey that you would like to share, or the journey of a family member, please contact Samara via the contact page or through the Facebook group here - https://www.facebook.com/groups/1719244788294109 

This website has been put together by Pink Disease sufferers and their families to help others who are living with this disease. 

Whilst we have checked and referenced all details on this site, this is not a medical site and you should always refer to your doctor if you have any questions or concerrns. 
 

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